Well two weeks actually. Last week I had not one but two district vampires arrive to take my blood. I had visions of them taking blood from both arms at once lol I did joke and ask if one of them was there to hold me down and the younger one said no, she was there to hold the other down as apparently she was still training even though she was definitely old enough to claim her bus pass and pension! The younger of the two said the older one may have to prick me 5 times with the needle to get it right. You can imagine how I felt! Especially with having EDS and dodgy skin and veins. Luckily the younger one ended up doing it and as she did so she said to the older one, you can see I have gone in deeper under the skin, on the last patient you were just under the skin. Thank god she wasn’t the one doing it on me then! I was also mildly surprised she took five tubes of blood from me, usually its two or three. Lord knows what my GP is testing in addition to my usual. On the 5th tube my vein gave up and collapsed and she said I would have a bruise, well no s*** sherlock! I have EDS I ALWAYS get a bruise! and what a lovely multi-colour bruise it was, along with some tearing of my skin and what looked like a slit as if she’d used a massive needle. Still, it’s healing now and all that remains is an odd, swollen lump.
Tweedledee and Tweedledum then had to take my BP because it was so high when I saw my Dr. Seriously it was like like some bizarre film. They BOTH had a go, well at least 3 times each! The younger one couldn’t feel my pulse as it was weak. I just smiled knowingly and said that can be normal with me and POTS. She just could not get a reading at all. It was a manual blood pressure thingy rather than digital, she said GP’s don’t have a clue how to take BP so have to use digital ones lol After her faffing about TweedleDum had a go but didn’t start off too well as she couldn’t work out which way round the cuff went as it looked different to the one she’d used before, then she couldn’t read the dial/gauge thing because she didn’t bring her glasses. She eventually managed to get a reading 140/90 but of course TweedleDee decided to double check it and had another couple of goes and STILL couldn’t get a reading. By then I was getting bored so asked them to get out my digital monitor that I have been using myself for the past 8yrs. I had it strapped on in seconds and TweedleDee remarked that I was a pro, I reigned in the urge to laugh after their fiasco. Anyway, it came out at 160/110 but is anyone surprised after all their mucking about! Of course I checked it throughout the day after they’d gone and an hour later it went down to 117/82 and stayed down ever since. It was 115/71 yesterday as well even though I have had a stressful time of it this week….
My Mum who is my full time carer had her follow up colonoscopy this week . My POTS as per usual went nuts, it over reacted and I had that sunburn type heat radiating from my legs and which proceeded to spread every where else then my arms and legs went numb. I felt so on edge all the time, I didn’t sleep well for 2 nights. Plus I have felt drained of all energy which has affected my breathing since. No doubt it’ll take to the beginning of next week to recover. I was also worried because the hospital had restricted anything but emergency and essential visiting because they had a second wave of that horrid nororvirus. I already have a fear of stomach bugs, one landed me in the hospital years ago. With having POTS, within half an hour of something like that you can bet I’ll be at the point of collapsing and struggling to breathe. The morning she went in they actually lifted the restrictions and no sign of it so far. That’s the last thing I need right now. That kind of virus also knocks me for six for several months. Anyway, they found one polyp, which they saw on her sigmoidoscopy four weeks ago, this time they managed to remove it. Nothing else was found, thank god. They’ve probably done a biopsy on it but the discharge sheet had no follow up appointment or another Colonoscopy to be done on it so fingers crossed it’s all good.
If all that wasn’t enough, the day she was in hospital having it done, my lettings agency rang asking if a landlady can come see the house today (Sat) as she may buy it. My present landlady wants to sell to another landlord yet is asking silly money for it, she wants 30k over the market price and can’t think why no one wants to look round. She blamed it on my mum for not washing the net curtains in the winter! Anyway, this woman who is looking round lives in London but has another property down here she rents out and wants another one. I doubt she will buy it as it it so overpriced and also the bathroom is many decades old and needs a complete new suite, the windows need replacing and we have a mould problem not to mention the decor is really dated. There’s another up for sale near by which is a detached with 5 bedrooms for the same price! This one has 3 and semi-detached to give you an idea of how overpriced it is.
Ooh, I forgot to mention, I’ve been trying to get hold of my blood test results but no ones phoned me back. I have this problem every time and have to chase them up for weeks. Next week will no doubt see me phoning them relentlessly trying to speak to someone about my results. I did however get my GP to agree to prescribe me Lyrica instead of Gabapentin, tough to get here as it costs so much. The box of pills have been sat on my shelf for a week, that side-effect list is downright scary! Terrifying in fact. Rapid weight gain?? Er, hello, I just bust a gut getting rid of 16 unslightly pounds and still have 12 to go. Swelling of extremities due to water retention?? I’m on florinef which already retains fluid! Not to mention dizziness, low bp and numerous others. Isn’t this meant to actually help me, not give me the same symptoms I already have or make them worse lol It really worries me about the sedation effects too, when I get dopey and tired I have to really focus to breathe already, so I’m really wary this is going to dope me up and affect my breathing. Tramadol did exactly that. I’m in two minds about taking it as you can imagine. She did give me the lowest dose possible to start, 25mg. I guess I can always stop it again if after a week or two if the side effects are unbearable. I can only hope I’m one of those whose body loves it and it ends up being the best thing I ever did.