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- NEW BLOG POST: Good News! wp.me/p11q3O-bu 5 days ago
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My weight loss progress

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Monthly Archives: April 2011
Meeting Mr V?
If you’re a regular reader you’ll know I have been chatting online and texting/phone calls with a man I met online quite some time ago, getting on for a year in fact. He doesn’t seem worried I am chronically ill … Continue reading
Posted in Everyday living, Psychology Courses, Relationships
Tagged autonomic dysfunction, bed, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, Ehlers–Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, postural orthostatic tachycardia syndrome, relationships, Single, single life, Stress, virtual dates, virtual dating
1 Comment
Stress I could do without…
I’m still having an on-going saga with my son. I feel like I haven’t slept properly for a week. My neck and shoulder muscles have become tight and my lower back causing pain in my pelvis and down my legs … Continue reading
Posted in Benefits, Chronic illness and Parenting, Everyday living
Tagged autonomic dysfunction, bed, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, postural orthostatic tachycardia syndrome, POTS, psychology courses, Stress
4 Comments
What a week it’s been.
Haven’t posted in a while, the first 3 or 4 days from last weekend were extremely busy for me. I was studying for 6hrs a day plus attempting to build a therapy building on Second Life, despite a little tiredness … Continue reading
Keeping Up.
I seem to be doing rather well at keeping up with everything these past couple of weeks and I know for certain the two large mugs of coffee a day with 135mg in each is helping me do that. Thank … Continue reading
Posted in Achievements despite being ill, Caffeine & POTS, Everyday living, Psychology Courses
Tagged autonomic dysfunction, bed, bedbound, bedridden, chronic illness, Coffee, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, postural orthostatic tachycardia syndrome, psychology courses, reading, Second Life, Tassimo
1 Comment
The verdict! (Plus benefit woes)
‘Dun, dun, dun’…. I think I’m actually keeping the mattress! I sleep fine on it, the initial aches are fading away and the springs have more ‘give’ in them now my butt has been sat on it for a week … Continue reading
Posted in Choosing a bed/mattress, Disability Benefits, Everyday living, Pain
Tagged autonomic dysfunction, back pain, bed, Chiropractic, chronic illness, Conditions and Diseases, Costochondritis, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, Pain, postural orthostatic tachycardia syndrome, POTS, Stress
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I’m even more confused.
So, mattress was put on my bed Wednesday night. It is 12″ thick. With my numerous toppers it became 15″ high on top of my sprung base. I almost needed a step ladder to climb into it and I’m not … Continue reading
Posted in Choosing a bed/mattress, Everyday living, Pain
Tagged autonomic dysfunction, back pain, backache, bed, chronic illness, Conditions and Diseases, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, illness, Mattress, Pain, Pain Management, postural orthostatic tachycardia syndrome
11 Comments
Soft & Floppy or Rock hard?
Get your minds out the gutter! I’m talking about mattresses! My new one arrived yesterday. Typically, after my good week last week, yesterday I crashed and burned. I woke up feeling so drained and unnaturally tired as if I’d have … Continue reading
Posted in Choosing a bed/mattress, Ehlers-Danlos, Everyday living, Pain
Tagged autonomic dysfunction, back pain, backache, bed, Bedroom, chronic illness, Conditions and Diseases, Costochondritis, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, illness, Mattress, Pain, postural orthostatic tachycardia syndrome, POTS, Shopping, Sleep, Tassimo
2 Comments
The good side to caffeine!
Despite all the bad press on the effects of caffeine, us Potsie’s can practically thrive on the stuff, me included. Despite previous medical advice that people like us should steer clear, my specialist told me to have 500mg a day, … Continue reading
Posted in Achievements despite being ill, Caffeine & POTS, Everyday living, POTS, Psychology Courses
Tagged autonomic dysfunction, bed, Caffeine, Caffeine tablets, chronic illness, Coffee, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, postural orthostatic tachycardia syndrome, psychology courses, Second Life
5 Comments
