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Follow me on Twitter
- NEW BLOG POST: Good News! wp.me/p11q3O-bu 6 days ago
- .@chestnutkay good news! Got a 'brownie' just now. Put in support group on reconsideration! Woohoo! 1 week ago
- NEW BLOG POST: Still shrinking wp.me/p11q3O-bq 1 week ago
- Really suffering with a pain flare up. My bum cheeks, hips and legs are screaming at me. Lavender oil, stretching &heat pads not helping :( 3 weeks ago
- NEW BLOG POST: What a week! wp.me/p11q3O-bo 4 weeks ago
My weight loss progress
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Monthly Archives: August 2011
Success!
Well my son went with his mentor today to go and play a game of Pool and get to know each other. They also looked round the college building after before coming back home. He came back happy and full … Continue reading
Posted in Chronic illness and Parenting, Everyday living, Exercise/Pacing, Pain, POTS, POTS/EDS and time of the month
Tagged autonomic dysfunction, bed, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, Ehlers–Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, illness, Menstrual cycle, postural orthostatic tachycardia syndrome
1 Comment
Can I hibernate please?
I didn’t get much sleep the night before last due to my son having a teenage tantrum. He never had the ‘terrible twos’, he’s more than making up for it right now! I also did not get much sleep last … Continue reading
Whirly Head
My heads in a whirl, I have so much needing to be done, things that have been done this past week, I just haven’t had a chance to blog til now. I had a meeting yesterday with a man who … Continue reading
Posted in Chronic illness and Parenting, Everyday living, Giving up smoking
Tagged autonomic dysfunction, bed, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, Ehlers–Danlos syndrome, Electronic cigarette, fybromyalgia, Health, hypermobility syndrome, illness, postural orthostatic tachycardia syndrome, POTS
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Chronic Dating
I’ve been meaning to write this one for quite some time. As a qualified relationship and psychosexual therapist who is also chronically ill who better to write about it! This is mainly based on my experiences with dating whilst stuck … Continue reading
Posted in Chronic Illness and Dating, Relationships
Tagged autonomic dysfunction, Chronic fatigue syndrome, chronic illness, Conditions and Diseases, Dating, disability, dysautonomia, Ehlers-Danlos syndrome, Ehlers–Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, illness, postural orthostatic tachycardia syndrome, relationships, Single, single life, virtual dates, virtual dating
7 Comments
Have I been drugged?!
Not literally but that’s how I’ve felt increasingly as the days pass. I’ve been so damn tired and lethargic and not up to doing anything at all. All I’ve felt like doing is sleeping, although I haven’t. I was starting … Continue reading
Posted in Everyday living, Exercise/Pacing
Tagged autonomic dysfunction, bed, Chronic fatigue syndrome, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, Ehlers–Danlos syndrome, exercise, fatigue, Fitness, fybromyalgia, Health, hypermobility syndrome, illness, Pilates, postural orthostatic tachycardia syndrome
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Playing detective…
I think I have finally worked out what the itchy rash on my hand really was. I have had Raynaud’s since I can remember and it seems to be down to that and not an allergy to clothing dye as … Continue reading
Posted in Everyday living, Nightmare Doctors, POTS, Raynaud's, Stress
Tagged autonomic dysfunction, bed, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, Ehlers–Danlos syndrome, Electronic cigarette, fybromyalgia, Health, hypermobility syndrome, illness, Pilates, postural orthostatic tachycardia syndrome, Rash, Raynaud's phenomenon, Stress, vaping
4 Comments
A strange few days…
I can’t believe its been almost a week since I last posted. Where is the time going?? I’m sure someone has speeded it up! I feel as if I’ve done nothing but fiddle about with my new toy, my e-cig … Continue reading
Posted in Everyday living, Giving up smoking
Tagged autonomic dysfunction, bed, chronic illness, Conditions and Diseases, Contact dermatitis, Dye, dysautonomia, Ehlers-Danlos syndrome, Electronic cigarette, fybromyalgia, Health, illness, postural orthostatic tachycardia syndrome, Propylene Glycol, Rash, Skin
5 Comments
