Author Archives: Livinglifefromabed

About Livinglifefromabed

I have numerous chronic illnesses, Postural Orthostatic Tachycardia Syndrome, Ehlers-Danlos Syndrome type 3, coeliac disease, raynaud's to name but a few! I have been mostly bedbound since 1996. This is my account of living a life from my bed. I'm proud of the things I have achieved despite the struggles I live with every day.

Good News!

Just a quickie. I’ve had the most awful week with my POTS, the full gamut of symptoms from heart rate and BP going bonkers in every direction, weakness and exhaustion, difficulty breathing, those internal ‘vibrations’ and pretty much everything else … Continue reading

Posted in Disability Benefits, POTS | Tagged , , , , | Leave a comment

Still shrinking

After what seemed like an endless plateau of no weight loss, although in reality it was 3 1/2 wks, I was getting frustrated. Up til then I had been regularly dropping at least a pound a week since the end … Continue reading

Posted in Achievements despite being ill, Exercise/Pacing, Losing weight with chronic illness | Tagged , , , , , , , , , , | 6 Comments

What a week!

Well two weeks actually. Last week I had not one but two district vampires arrive to take my blood. I had visions of them taking blood from both arms at once lol I did joke and ask if one of … Continue reading

Posted in Catching viruses, Ehlers-Danlos, Everyday living, Losing weight with chronic illness, Medicines, Stress, Test Results | Tagged , , , , , , , , , , | Leave a comment

Urgh and Blah

Yep, urgh and blah is exactly how I’ve been feeling the past few days. Dear Aunt Flo, that annoying, useless, unwelcome relative that comes to  intrude and disrupts everything once a month. My POTS has gone bananas this time. Heart … Continue reading

Posted in Everyday living, Exercise/Pacing, Losing weight with chronic illness, Medicines, POTS, POTS/EDS and time of the month | Tagged , , , , , , , , , | 6 Comments

Lotsa stress!

I had a stressful time of it all last week. My Mum (and carer) had to have some investigations at the hospital for stomach related problems and I don’t deal with stress at all well. The POTS goes haywire. I … Continue reading

Posted in Disability Benefits, Everyday living, POTS, Stress, Test Results | 3 Comments

Control Freakery

I’ll admit it, I like to feel in control of everything. I’m sure a lot of those with chronic illness feel the same. Trying to stay in control of what happens and when makes me feel safer, keeps my illnesses … Continue reading

Posted in Everyday living, Losing weight with chronic illness | Tagged , , , , , , , | 2 Comments

Potassium results

Just a quick one. Got my potassium test results back. Surprisingly but happily they’re fine, in fact they’re slightly over the top end of normal range. I can discount low potassium for giving me these awful ribcage cramps and spasms … Continue reading

Posted in Ehlers-Danlos, Pain, Test Results, Uncategorized | Tagged , , , , , , , , | Leave a comment

The vomit ninja

Did you know there is a vomit ninja? There is! He visited me last Sat. Completely out of the blue, he sneaked up on me and made me spew my guts without warning, then disappeared as fast as he arrived … Continue reading

Posted in Everyday living, Losing weight with chronic illness, Uncategorized | Tagged , , , , , , , , , | Leave a comment

Into the den of doom!

The den of doom would actually be my first work focused interview as a part of being in the WRAG group of ESA. It was set for last Thurs and I had sent in my letter telling them they’d have … Continue reading

Posted in Benefits, Disability Benefits, Ehlers-Danlos, Losing weight with chronic illness, POTS, Test Results, Weight | Tagged , , , , , , , | Leave a comment

The incredible shrinking woman

Well, it’s time to say goodbye once and for all to my yo-yo-ing weight that has been with me all my life. I never really paid attention to what I was eating, how many calories a day I was having … Continue reading

Posted in Everyday living, Exercise/Pacing, Losing weight with chronic illness | Tagged , , , , , , , , , , , | 1 Comment