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Follow me on Twitter
- NEW BLOG POST: Good News! wp.me/p11q3O-bu 2 days ago
- .@chestnutkay good news! Got a 'brownie' just now. Put in support group on reconsideration! Woohoo! 3 days ago
- NEW BLOG POST: Still shrinking wp.me/p11q3O-bq 1 week ago
- Really suffering with a pain flare up. My bum cheeks, hips and legs are screaming at me. Lavender oil, stretching &heat pads not helping :( 2 weeks ago
- NEW BLOG POST: What a week! wp.me/p11q3O-bo 3 weeks ago
My weight loss progress

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Category Archives: Benefits
Into the den of doom!
The den of doom would actually be my first work focused interview as a part of being in the WRAG group of ESA. It was set for last Thurs and I had sent in my letter telling them they’d have … Continue reading
Posted in Benefits, Disability Benefits, Ehlers-Danlos, Losing weight with chronic illness, POTS, Test Results, Weight
Tagged autonomic dysfunction, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, hypermobility syndrome, postural orthostatic tachycardia syndrome
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The dreaded brown envelope…
It was pushed through the letterbox this morning and I was unable to get it until my mum who is also my carer had come back from the local shops as I am unable to get down the stairs so … Continue reading
Happy New Year!
Happy New Year! Another new year dawns and I hope this one brings happiness and most importantly better health for all of us who suffer with chronic conditions. I wonder what this year will bring for me. It hasn’t started … Continue reading
Posted in Benefits, Costochondritis, Everyday living, Pain, POTS
Tagged autonomic dysfunction, chronic illness, Conditions and Diseases, Costochondritis, Ehlers-Danlos syndrome, electrolytes, Fludrocortisone, fybromyalgia, Health, hypermobility syndrome, illness, Inflammation, Pain, postural orthostatic tachycardia syndrome, potassium
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Signed, sealed, delivered…
I have finally managed to fill out that damn form and waved it off goodbye along with an article of information from Blair Grubb on what POTS actually is because quite frankly over here it’s incredibly rare for a Dr … Continue reading
Benefit Interrogation Time
I had a lovely letter pop through the door a couple of weeks ago informing me the benefits agency are now transferring me from Income Support to Employment and support allowance and would soon receive a form to fill in … Continue reading
Posted in Benefits, Disability Benefits, Ehlers-Danlos, Everyday living, Pain, POTS, Projects, Stress
Tagged autonomic dysfunction, bed, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, illness, postural orthostatic tachycardia syndrome, Stress
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My new home?
Could possibly turn out to be the streets the way the Gov is going with its reforms to reduce the amount of money for housing benefit from Jan next year. As I mentioned in my previous post, I have been … Continue reading
Stress I could do without…
I’m still having an on-going saga with my son. I feel like I haven’t slept properly for a week. My neck and shoulder muscles have become tight and my lower back causing pain in my pelvis and down my legs … Continue reading
Posted in Benefits, Chronic illness and Parenting, Everyday living
Tagged autonomic dysfunction, bed, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, postural orthostatic tachycardia syndrome, POTS, psychology courses, Stress
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