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- NEW BLOG POST: Good News! wp.me/p11q3O-bu 2 days ago
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- Really suffering with a pain flare up. My bum cheeks, hips and legs are screaming at me. Lavender oil, stretching &heat pads not helping :( 2 weeks ago
- NEW BLOG POST: What a week! wp.me/p11q3O-bo 3 weeks ago
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Category Archives: Ehlers-Danlos
What a week!
Well two weeks actually. Last week I had not one but two district vampires arrive to take my blood. I had visions of them taking blood from both arms at once lol I did joke and ask if one of … Continue reading
Posted in Catching viruses, Ehlers-Danlos, Everyday living, Losing weight with chronic illness, Medicines, Stress, Test Results
Tagged autonomic dysfunction, chronic illness, Colonoscopy, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, postural orthostatic tachycardia syndrome, Stress
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Potassium results
Just a quick one. Got my potassium test results back. Surprisingly but happily they’re fine, in fact they’re slightly over the top end of normal range. I can discount low potassium for giving me these awful ribcage cramps and spasms … Continue reading
Into the den of doom!
The den of doom would actually be my first work focused interview as a part of being in the WRAG group of ESA. It was set for last Thurs and I had sent in my letter telling them they’d have … Continue reading
Posted in Benefits, Disability Benefits, Ehlers-Danlos, Losing weight with chronic illness, POTS, Test Results, Weight
Tagged autonomic dysfunction, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, hypermobility syndrome, postural orthostatic tachycardia syndrome
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Benefit Interrogation Time
I had a lovely letter pop through the door a couple of weeks ago informing me the benefits agency are now transferring me from Income Support to Employment and support allowance and would soon receive a form to fill in … Continue reading
Posted in Benefits, Disability Benefits, Ehlers-Danlos, Everyday living, Pain, POTS, Projects, Stress
Tagged autonomic dysfunction, bed, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, illness, postural orthostatic tachycardia syndrome, Stress
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Goodbye my furry friend.
Has it really been two months since I last made a blog post?! Where does the time go?? Seriously, I thought it had been 3-4 weeks! I’ve been so busy with different projects I’ve barely had time to do anything … Continue reading
Posted in Catching viruses, Ehlers-Danlos, Everyday living, Exercise/Pacing, Pain, POTS, Projects, Psychology Courses
Tagged autonomic dysfunction, back pain, backache, bed, chronic illness, Conditions and Diseases, Costochondritis, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, illness, postural orthostatic tachycardia syndrome, POTS, psychology courses
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Summer has finally arrived!
Summer seems to have finally arrived this year, everywhere I look (online!) people are rejoicing about the heat, getting their pasty white bodies out in skimpy summer clothes, or in the case of my next doors grandchild today, completely starkers … Continue reading
Posted in Catching viruses, Costochondritis, Ehlers-Danlos, Everyday living, Exercise/Pacing, Heat Intolerance, Projects, Psychology Courses
Tagged a/c, air con, air conditioner, air conditioning, autonomic dysfunction, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, illness, postural orthostatic tachycardia syndrome, psychology courses
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I’m such a bad girl!
It’s been absolutely ages since I last posted but life has been rather hectic with one thing and another. Studying, becoming involved in another venture (oh I do love my projects!) and of course battling along trying to cope with … Continue reading
Posted in Chiropractic, Ehlers-Danlos, Everyday living, POTS
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My body has turned into rice crispies.
You know, the snap, crackle and pop? Yep, that’s the sounds emanating from my bod lately. Thanks to EDS, my neck is crunching badly, I wince and cringe at the sound of bone against bone and cartilage as I turn … Continue reading
Posted in Chiropractic, Ehlers-Danlos, Everyday living, Pain, POTS, Psychology Courses, Sensory neuropathic cough & Laryngospasm
Tagged autonomic dysfunction, back pain, bed, Chiropractic, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, Muscle, Neck pain, postural orthostatic tachycardia syndrome, psychology courses
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I got a distinction!
Ok, ok, I know I’ve been lax lately with posting but I’ve been sooooooooooooo busy. You may beat me with a pointy stick lol I got my certificate for my course on Sat and found out I had actually got … Continue reading
Posted in Achievements despite being ill, Chiropractic, Costochondritis, Ehlers-Danlos, Everyday living, Pain, Projects, Psychology Courses
Tagged autonomic dysfunction, bed, chronic illness, Conditions and Diseases, Costochondritis, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, illness, Joomla, Pain, postural orthostatic tachycardia syndrome, Psychology, psychology courses, Psychotherapy
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I passed!
That’s right folks, I passed my psychology course! Woohoo! Just got to wait 10wks for it to go through the accreditation board to get my my piece of paper to put in a frame and add to the rest of … Continue reading
Posted in Achievements despite being ill, Ehlers-Danlos, Gastroparesis, Psychology Courses, Sensory neuropathic cough & Laryngospasm
Tagged autonomic dysfunction, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, laryngospasm, postural orthostatic tachycardia syndrome, psychology courses, sensory neuropathic cough, Vocal cord dysfunction, Vocal folds
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