Category Archives: Everyday living

What a week!

Well two weeks actually. Last week I had not one but two district vampires arrive to take my blood. I had visions of them taking blood from both arms at once lol I did joke and ask if one of … Continue reading

Posted in Catching viruses, Ehlers-Danlos, Everyday living, Losing weight with chronic illness, Medicines, Stress, Test Results | Tagged , , , , , , , , , , | Leave a comment

Urgh and Blah

Yep, urgh and blah is exactly how I’ve been feeling the past few days. Dear Aunt Flo, that annoying, useless, unwelcome relative that comes to  intrude and disrupts everything once a month. My POTS has gone bananas this time. Heart … Continue reading

Posted in Everyday living, Exercise/Pacing, Losing weight with chronic illness, Medicines, POTS, POTS/EDS and time of the month | Tagged , , , , , , , , , | 6 Comments

Lotsa stress!

I had a stressful time of it all last week. My Mum (and carer) had to have some investigations at the hospital for stomach related problems and I don’t deal with stress at all well. The POTS goes haywire. I … Continue reading

Posted in Disability Benefits, Everyday living, POTS, Stress, Test Results | 3 Comments

Control Freakery

I’ll admit it, I like to feel in control of everything. I’m sure a lot of those with chronic illness feel the same. Trying to stay in control of what happens and when makes me feel safer, keeps my illnesses … Continue reading

Posted in Everyday living, Losing weight with chronic illness | Tagged , , , , , , , | 2 Comments

The vomit ninja

Did you know there is a vomit ninja? There is! He visited me last Sat. Completely out of the blue, he sneaked up on me and made me spew my guts without warning, then disappeared as fast as he arrived … Continue reading

Posted in Everyday living, Losing weight with chronic illness, Uncategorized | Tagged , , , , , , , , , | Leave a comment

The incredible shrinking woman

Well, it’s time to say goodbye once and for all to my yo-yo-ing weight that has been with me all my life. I never really paid attention to what I was eating, how many calories a day I was having … Continue reading

Posted in Everyday living, Exercise/Pacing, Losing weight with chronic illness | Tagged , , , , , , , , , , , | 1 Comment

The dreaded brown envelope…

It was pushed through the letterbox this morning and I was unable to get it until my mum who is also my carer had come back from the local shops as I am unable to get down the stairs so … Continue reading

Posted in Benefits, Disability Benefits, Everyday living | Tagged , , , , , , , , , | 7 Comments

Happy New Year!

Happy New Year! Another new year dawns and I hope this one brings happiness and most importantly better health for all of us who suffer with chronic conditions. I wonder what this year will bring for me. It hasn’t started … Continue reading

Posted in Benefits, Costochondritis, Everyday living, Pain, POTS | Tagged , , , , , , , , , , , , , , | Leave a comment

My pet alien, the tenant from hell

For those of a squeamish nature, I highly recommend you don’t read or look at this post due to the descriptions and picture included. Approx 8yrs ago a sebaceous cyst appeared on the back of my neck, it was nothing … Continue reading

Posted in Everyday living | Leave a comment

Benefit Interrogation Time

I had a lovely letter pop through the door a couple of weeks ago informing me the benefits agency are now transferring me from Income Support to Employment and support allowance and would soon receive a form to fill in … Continue reading

Posted in Benefits, Disability Benefits, Ehlers-Danlos, Everyday living, Pain, POTS, Projects, Stress | Tagged , , , , , , , , , , , | 2 Comments