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Follow me on Twitter
- NEW BLOG POST: Good News! wp.me/p11q3O-bu 2 days ago
- .@chestnutkay good news! Got a 'brownie' just now. Put in support group on reconsideration! Woohoo! 3 days ago
- NEW BLOG POST: Still shrinking wp.me/p11q3O-bq 1 week ago
- Really suffering with a pain flare up. My bum cheeks, hips and legs are screaming at me. Lavender oil, stretching &heat pads not helping :( 2 weeks ago
- NEW BLOG POST: What a week! wp.me/p11q3O-bo 3 weeks ago
My weight loss progress

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Category Archives: Exercise/Pacing
Still shrinking
After what seemed like an endless plateau of no weight loss, although in reality it was 3 1/2 wks, I was getting frustrated. Up til then I had been regularly dropping at least a pound a week since the end … Continue reading
Posted in Achievements despite being ill, Exercise/Pacing, Losing weight with chronic illness
Tagged chronic illness, postural orthostatic tachycardia syndrome, Ehlers-Danlos syndrome, fybromyalgia, hypermobility syndrome, dysautonomia, autonomic dysfunction, Health, Conditions and Diseases, Weight loss, exercise
6 Comments
Urgh and Blah
Yep, urgh and blah is exactly how I’ve been feeling the past few days. Dear Aunt Flo, that annoying, useless, unwelcome relative that comes to intrude and disrupts everything once a month. My POTS has gone bananas this time. Heart … Continue reading
Posted in Everyday living, Exercise/Pacing, Losing weight with chronic illness, Medicines, POTS, POTS/EDS and time of the month
Tagged autonomic dysfunction, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, Health, hypermobility syndrome, postural orthostatic tachycardia syndrome, POTS, Weight loss
6 Comments
Goodbye my furry friend.
Has it really been two months since I last made a blog post?! Where does the time go?? Seriously, I thought it had been 3-4 weeks! I’ve been so busy with different projects I’ve barely had time to do anything … Continue reading
Posted in Catching viruses, Ehlers-Danlos, Everyday living, Exercise/Pacing, Pain, POTS, Projects, Psychology Courses
Tagged autonomic dysfunction, back pain, backache, bed, chronic illness, Conditions and Diseases, Costochondritis, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, illness, postural orthostatic tachycardia syndrome, POTS, psychology courses
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Summer has finally arrived!
Summer seems to have finally arrived this year, everywhere I look (online!) people are rejoicing about the heat, getting their pasty white bodies out in skimpy summer clothes, or in the case of my next doors grandchild today, completely starkers … Continue reading
Posted in Catching viruses, Costochondritis, Ehlers-Danlos, Everyday living, Exercise/Pacing, Heat Intolerance, Projects, Psychology Courses
Tagged a/c, air con, air conditioner, air conditioning, autonomic dysfunction, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, illness, postural orthostatic tachycardia syndrome, psychology courses
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Merry Christmas!
I have been busy beavering away trying to get my 4th course assignment done and submitted in time before xmas. I just hope it doesn’t come back for me to redo as there are a couple of questions I’m not … Continue reading
Posted in Everyday living, Exercise/Pacing
Tagged autonomic dysfunction, bed, Christmas, chronic illness, Conditions and Diseases, Costochondritis, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, Holiday, hypermobility syndrome, illness, Pain, postural orthostatic tachycardia syndrome, psychology courses
4 Comments
Miserable time.
I had chiropractic treatment last week and was surprised when she said my lower back was fine and the top right vertebrae in my neck which is always out was actually still ok for the first time EVER! She said … Continue reading
Posted in Chiropractic, Ehlers-Danlos, Everyday living, Exercise/Pacing, Pain, Psychology Courses
Tagged autonomic dysfunction, back pain, backache, bed, Chiropractic, chronic illness, Conditions and Diseases, Costochondritis, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, illness, Inflammation, Musculoskeletal Disorders, Neck, Neck pain, Pain, Pain Management, postural orthostatic tachycardia syndrome, psychology courses
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I think it’s working!
Ssssh, don’t want to tempt fate but my pc came back from repair a few days ago and so far, I think it’s fixed! Hallelujah! It took me all day Thurs putting all my software back on and changing settings … Continue reading
Posted in Everyday living, Exercise/Pacing, Heat Intolerance, POTS/EDS and time of the month, Psychology Courses, Uncategorized
Tagged autonomic dysfunction, bed, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, postural orthostatic tachycardia syndrome, psychology courses
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Success!
Well my son went with his mentor today to go and play a game of Pool and get to know each other. They also looked round the college building after before coming back home. He came back happy and full … Continue reading
Posted in Chronic illness and Parenting, Everyday living, Exercise/Pacing, Pain, POTS, POTS/EDS and time of the month
Tagged autonomic dysfunction, bed, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, Ehlers–Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, illness, Menstrual cycle, postural orthostatic tachycardia syndrome
1 Comment
Have I been drugged?!
Not literally but that’s how I’ve felt increasingly as the days pass. I’ve been so damn tired and lethargic and not up to doing anything at all. All I’ve felt like doing is sleeping, although I haven’t. I was starting … Continue reading
Posted in Everyday living, Exercise/Pacing
Tagged autonomic dysfunction, bed, Chronic fatigue syndrome, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, Ehlers–Danlos syndrome, exercise, fatigue, Fitness, fybromyalgia, Health, hypermobility syndrome, illness, Pilates, postural orthostatic tachycardia syndrome
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