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- NEW BLOG POST: Good News! wp.me/p11q3O-bu 4 days ago
- .@chestnutkay good news! Got a 'brownie' just now. Put in support group on reconsideration! Woohoo! 5 days ago
- NEW BLOG POST: Still shrinking wp.me/p11q3O-bq 1 week ago
- Really suffering with a pain flare up. My bum cheeks, hips and legs are screaming at me. Lavender oil, stretching &heat pads not helping :( 3 weeks ago
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Category Archives: POTS
Good News!
Just a quickie. I’ve had the most awful week with my POTS, the full gamut of symptoms from heart rate and BP going bonkers in every direction, weakness and exhaustion, difficulty breathing, those internal ‘vibrations’ and pretty much everything else … Continue reading
Urgh and Blah
Yep, urgh and blah is exactly how I’ve been feeling the past few days. Dear Aunt Flo, that annoying, useless, unwelcome relative that comes to intrude and disrupts everything once a month. My POTS has gone bananas this time. Heart … Continue reading
Posted in Everyday living, Exercise/Pacing, Losing weight with chronic illness, Medicines, POTS, POTS/EDS and time of the month
Tagged autonomic dysfunction, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, Health, hypermobility syndrome, postural orthostatic tachycardia syndrome, POTS, Weight loss
6 Comments
Lotsa stress!
I had a stressful time of it all last week. My Mum (and carer) had to have some investigations at the hospital for stomach related problems and I don’t deal with stress at all well. The POTS goes haywire. I … Continue reading
Posted in Disability Benefits, Everyday living, POTS, Stress, Test Results
3 Comments
Into the den of doom!
The den of doom would actually be my first work focused interview as a part of being in the WRAG group of ESA. It was set for last Thurs and I had sent in my letter telling them they’d have … Continue reading
Posted in Benefits, Disability Benefits, Ehlers-Danlos, Losing weight with chronic illness, POTS, Test Results, Weight
Tagged autonomic dysfunction, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, hypermobility syndrome, postural orthostatic tachycardia syndrome
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Happy New Year!
Happy New Year! Another new year dawns and I hope this one brings happiness and most importantly better health for all of us who suffer with chronic conditions. I wonder what this year will bring for me. It hasn’t started … Continue reading
Posted in Benefits, Costochondritis, Everyday living, Pain, POTS
Tagged autonomic dysfunction, chronic illness, Conditions and Diseases, Costochondritis, Ehlers-Danlos syndrome, electrolytes, Fludrocortisone, fybromyalgia, Health, hypermobility syndrome, illness, Inflammation, Pain, postural orthostatic tachycardia syndrome, potassium
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An update on my pet alien and other nasty stuff
Again, if you’re squeamish, don’t read Well folks, last Monday I phoned my doctor and gave her all the gory details of my alien invasion and just as I’d thought, she put me on clarithromycin 500mg 2x a day as … Continue reading
Benefit Interrogation Time
I had a lovely letter pop through the door a couple of weeks ago informing me the benefits agency are now transferring me from Income Support to Employment and support allowance and would soon receive a form to fill in … Continue reading
Posted in Benefits, Disability Benefits, Ehlers-Danlos, Everyday living, Pain, POTS, Projects, Stress
Tagged autonomic dysfunction, bed, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, illness, postural orthostatic tachycardia syndrome, Stress
2 Comments
Goodbye my furry friend.
Has it really been two months since I last made a blog post?! Where does the time go?? Seriously, I thought it had been 3-4 weeks! I’ve been so busy with different projects I’ve barely had time to do anything … Continue reading
Posted in Catching viruses, Ehlers-Danlos, Everyday living, Exercise/Pacing, Pain, POTS, Projects, Psychology Courses
Tagged autonomic dysfunction, back pain, backache, bed, chronic illness, Conditions and Diseases, Costochondritis, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, illness, postural orthostatic tachycardia syndrome, POTS, psychology courses
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I’m such a bad girl!
It’s been absolutely ages since I last posted but life has been rather hectic with one thing and another. Studying, becoming involved in another venture (oh I do love my projects!) and of course battling along trying to cope with … Continue reading
Posted in Chiropractic, Ehlers-Danlos, Everyday living, POTS
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My body has turned into rice crispies.
You know, the snap, crackle and pop? Yep, that’s the sounds emanating from my bod lately. Thanks to EDS, my neck is crunching badly, I wince and cringe at the sound of bone against bone and cartilage as I turn … Continue reading
Posted in Chiropractic, Ehlers-Danlos, Everyday living, Pain, POTS, Psychology Courses, Sensory neuropathic cough & Laryngospasm
Tagged autonomic dysfunction, back pain, bed, Chiropractic, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, Muscle, Neck pain, postural orthostatic tachycardia syndrome, psychology courses
2 Comments
