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- NEW BLOG POST: Good News! wp.me/p11q3O-bu 8 hours ago
- .@chestnutkay good news! Got a 'brownie' just now. Put in support group on reconsideration! Woohoo! 18 hours ago
- NEW BLOG POST: Still shrinking wp.me/p11q3O-bq 6 days ago
- Really suffering with a pain flare up. My bum cheeks, hips and legs are screaming at me. Lavender oil, stretching &heat pads not helping :( 2 weeks ago
- NEW BLOG POST: What a week! wp.me/p11q3O-bo 3 weeks ago
My weight loss progress
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Tag Archives: Ehlers-Danlos syndrome
Good News!
Just a quickie. I’ve had the most awful week with my POTS, the full gamut of symptoms from heart rate and BP going bonkers in every direction, weakness and exhaustion, difficulty breathing, those internal ‘vibrations’ and pretty much everything else … Continue reading
Still shrinking
After what seemed like an endless plateau of no weight loss, although in reality it was 3 1/2 wks, I was getting frustrated. Up til then I had been regularly dropping at least a pound a week since the end … Continue reading
Posted in Achievements despite being ill, Exercise/Pacing, Losing weight with chronic illness
Tagged autonomic dysfunction, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, exercise, fybromyalgia, Health, hypermobility syndrome, postural orthostatic tachycardia syndrome, Weight loss
6 Comments
What a week!
Well two weeks actually. Last week I had not one but two district vampires arrive to take my blood. I had visions of them taking blood from both arms at once lol I did joke and ask if one of … Continue reading
Posted in Catching viruses, Ehlers-Danlos, Everyday living, Losing weight with chronic illness, Medicines, Stress, Test Results
Tagged autonomic dysfunction, chronic illness, Colonoscopy, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, postural orthostatic tachycardia syndrome, Stress
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Urgh and Blah
Yep, urgh and blah is exactly how I’ve been feeling the past few days. Dear Aunt Flo, that annoying, useless, unwelcome relative that comes to intrude and disrupts everything once a month. My POTS has gone bananas this time. Heart … Continue reading
Posted in Everyday living, Exercise/Pacing, Losing weight with chronic illness, Medicines, POTS, POTS/EDS and time of the month
Tagged autonomic dysfunction, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, Health, hypermobility syndrome, postural orthostatic tachycardia syndrome, POTS, Weight loss
6 Comments
Control Freakery
I’ll admit it, I like to feel in control of everything. I’m sure a lot of those with chronic illness feel the same. Trying to stay in control of what happens and when makes me feel safer, keeps my illnesses … Continue reading
Potassium results
Just a quick one. Got my potassium test results back. Surprisingly but happily they’re fine, in fact they’re slightly over the top end of normal range. I can discount low potassium for giving me these awful ribcage cramps and spasms … Continue reading
The vomit ninja
Did you know there is a vomit ninja? There is! He visited me last Sat. Completely out of the blue, he sneaked up on me and made me spew my guts without warning, then disappeared as fast as he arrived … Continue reading
Posted in Everyday living, Losing weight with chronic illness, Uncategorized
Tagged autonomic dysfunction, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, Landlord, postural orthostatic tachycardia syndrome
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Into the den of doom!
The den of doom would actually be my first work focused interview as a part of being in the WRAG group of ESA. It was set for last Thurs and I had sent in my letter telling them they’d have … Continue reading
Posted in Benefits, Disability Benefits, Ehlers-Danlos, Losing weight with chronic illness, POTS, Test Results, Weight
Tagged autonomic dysfunction, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, hypermobility syndrome, postural orthostatic tachycardia syndrome
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The dreaded brown envelope…
It was pushed through the letterbox this morning and I was unable to get it until my mum who is also my carer had come back from the local shops as I am unable to get down the stairs so … Continue reading
