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- Birthday
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Archives
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Links to information and support
Follow me on Twitter
- NEW BLOG POST: Good News! wp.me/p11q3O-bu 3 days ago
- .@chestnutkay good news! Got a 'brownie' just now. Put in support group on reconsideration! Woohoo! 4 days ago
- NEW BLOG POST: Still shrinking wp.me/p11q3O-bq 1 week ago
- Really suffering with a pain flare up. My bum cheeks, hips and legs are screaming at me. Lavender oil, stretching &heat pads not helping :( 3 weeks ago
- NEW BLOG POST: What a week! wp.me/p11q3O-bo 3 weeks ago
My weight loss progress
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Tag Archives: fybromyalgia
Still shrinking
After what seemed like an endless plateau of no weight loss, although in reality it was 3 1/2 wks, I was getting frustrated. Up til then I had been regularly dropping at least a pound a week since the end … Continue reading
Posted in Achievements despite being ill, Exercise/Pacing, Losing weight with chronic illness
Tagged autonomic dysfunction, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, exercise, fybromyalgia, Health, hypermobility syndrome, postural orthostatic tachycardia syndrome, Weight loss
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What a week!
Well two weeks actually. Last week I had not one but two district vampires arrive to take my blood. I had visions of them taking blood from both arms at once lol I did joke and ask if one of … Continue reading
Posted in Catching viruses, Ehlers-Danlos, Everyday living, Test Results, Stress, Medicines, Losing weight with chronic illness
Tagged chronic illness, postural orthostatic tachycardia syndrome, Ehlers-Danlos syndrome, fybromyalgia, hypermobility syndrome, dysautonomia, autonomic dysfunction, Health, Stress, Conditions and Diseases, Colonoscopy
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Potassium results
Just a quick one. Got my potassium test results back. Surprisingly but happily they’re fine, in fact they’re slightly over the top end of normal range. I can discount low potassium for giving me these awful ribcage cramps and spasms … Continue reading
The vomit ninja
Did you know there is a vomit ninja? There is! He visited me last Sat. Completely out of the blue, he sneaked up on me and made me spew my guts without warning, then disappeared as fast as he arrived … Continue reading
Posted in Everyday living, Losing weight with chronic illness, Uncategorized
Tagged autonomic dysfunction, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, Landlord, postural orthostatic tachycardia syndrome
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Into the den of doom!
The den of doom would actually be my first work focused interview as a part of being in the WRAG group of ESA. It was set for last Thurs and I had sent in my letter telling them they’d have … Continue reading
Posted in Benefits, Disability Benefits, Ehlers-Danlos, Losing weight with chronic illness, POTS, Test Results, Weight
Tagged autonomic dysfunction, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, hypermobility syndrome, postural orthostatic tachycardia syndrome
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Happy New Year!
Happy New Year! Another new year dawns and I hope this one brings happiness and most importantly better health for all of us who suffer with chronic conditions. I wonder what this year will bring for me. It hasn’t started … Continue reading
Posted in Benefits, Costochondritis, Everyday living, Pain, POTS
Tagged autonomic dysfunction, chronic illness, Conditions and Diseases, Costochondritis, Ehlers-Danlos syndrome, electrolytes, Fludrocortisone, fybromyalgia, Health, hypermobility syndrome, illness, Inflammation, Pain, postural orthostatic tachycardia syndrome, potassium
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Another Christmas done and dusted.
Another Christmas has come and gone and I do hope those of you with chronic illnesses and disabilities managed to enjoy some of it at least. I know what a minefield it can be worrying what the day will bring, … Continue reading
Signed, sealed, delivered…
I have finally managed to fill out that damn form and waved it off goodbye along with an article of information from Blair Grubb on what POTS actually is because quite frankly over here it’s incredibly rare for a Dr … Continue reading
Benefit Interrogation Time
I had a lovely letter pop through the door a couple of weeks ago informing me the benefits agency are now transferring me from Income Support to Employment and support allowance and would soon receive a form to fill in … Continue reading
Posted in Benefits, Disability Benefits, Ehlers-Danlos, Everyday living, Pain, POTS, Projects, Stress
Tagged autonomic dysfunction, bed, chronic illness, Conditions and Diseases, dysautonomia, Ehlers-Danlos syndrome, fybromyalgia, Health, hypermobility syndrome, illness, postural orthostatic tachycardia syndrome, Stress
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